The ICOD project (Improving COgnition in Down syndrome), funded by European Union, aims to improve the cognitive impairment of individuals with Down syndrome with AEF0217, a first-in-class new pharmacological treatment developed by the French biotech Aelis Farma, and specifically designed to this end. The project was launched in February 2021 and a first ICOD symposium was held in Troina, Italy, on the occasion of the World Down syndrome Day 2022 with a strong participation of DS families.
The second ICOD symposium will take place in Madrid in 2023 at Hospital Universitario de la Princesa on the World Down syndrome Day (March 21st). The symposium will be specifically dedicated to increase the knowledge about innovative therapeutic approaches to cognitive deficits in DS and promote the involvement of adults with DS in research. Face-to-face interaction and active discussions between families, associations of individuals with Down syndrome and researchers involved in the ICOD project will be promoted, as well as with other researchers working in the field of Down syndrome.
This event will be designed in close cooperation with the European Down syndrome Association (EDSA) and associations of each participating European country in the ICOD project; in particular with Spanish Down syndrome organizations (Down España, Fundación Down Madrid, Down Catalunya, Fundació Catalana síndrome de Down among others), Federation Trisomie 21 France, Association Française pour la Recherche sur la Trisomie 21, Italian Down syndrome organizations (AIPD and Coordown) and the Italian Task Force for DS.
All the Videos Lectures from the Second ICOD Symposium held in Madrid 21 March 2023 are now
available in our Gallery section for DS families and associations
https://www.icod-project.eu/en/gallery
A great occasion of interaction and active discussions with DS families and associations!!
An interesting publication from the @ICOD_Project where the authors critically assess current therapeutic approaches, why therapies fail in clinical trials in Down syndrome, and what could be the path forward!!
https://pubmed.ncbi.nlm.nih.gov/36692980/
See the video on our ICOD YouTube Channel https://youtu.be/Olh1hDHodXc
A great occasion to meet DS families and associations in Spain and better explain the ICOD project!!
The 10th of August a relevant article was published in Italy on the famous weekly journal Panorama describing the aims and objectives of the ICOD project and the possible impact on people with Down syndrome in terms of autonomy and social inclusion. The article sparked an interesting debate with DS families on the ICOD Facebook page.
The 21st of September from 6.30 to 8.30 PM, Prof. Filippo Caraci has met in Catania (Auditorium San Luigi Gonzaga) an association of 50 DS families- Futuro 21- (President A. Sciatà)as a follow-up of the ICOD symposium in Troina (21-3-2022) to give further informations and updates to DS families on the ICOD project and the next coming steps such as the NIUS study. The NIUS study will start to evaluate the novel approach for the evaluation of cognitive symptoms adopted in the ICOD project https://www.facebook.com/events/3260166457597397
The NIUS study in the context of the ICOD project: informations for families
